Archive for the ‘ms lifelines’ Category

New year, time to run

Saturday, January 3rd, 2015

First off I just noticed that none of the posts I made this fall/winter have actually been published. They were sitting in drafts but they only had the first sentence. What’s up WP? Hopefully this one will find its way to the Internet and my reader(s?).

In what has become the main consistency in my running, it is time to get back into running again. I am feeling rather large at the moment weighing in at 190+ or so. When I was at my fighting weight (175) I was feeling a little thin especially when it came to rebif injections. The extra flab has made the shots easier (less painful, easier to absorb) and I have really liked that, however it is extra flab and I don’t like that! Clothes have been a bit tight and it is time for that to be reversed, Running on a regular basis is a huge part of that, also cutting out eating at night (nothing after 7 seems to works really well for me).

I am just gonna scrawl some quick notes as I need to get on putting christmas decorations away. I have stopped taking Ibuprofen and Acitominifen (sp?) when I take my shots. Hasn’t seemed to make a difference not taking one of each with each injection. Perhaps my body has normalized around the rebif as I don’t get any flu-like symptom/headaches. I feel good about not stressing my liver as much. New insurance this year under the ACA. My healthnet policy I had last year was cancelled by healthnet as they don’t want to participate in the ACA and instead want to continue the health care crisis. Must be more profitable for them! But my new policy will work really well for us. Last year I took on a platinum plan in order to get a low max out of pocket expense so I could afford the rebif. In talking with the mslifelines (the pharmaceutical company that makes rebif, actually phizer) I found out about there plans to help people afford the meds which will cover the co-pay costs for under-insured peoples. This allows me to get a reasonable silver plan and will save me about 50% each month, decent! In addition, with mslifelines covering the copays, it actually counts as if I were paying towards my max out of pocket which once I hit it, all prescriptions will be free. Extra decent! In other meds news I am opting out of the med marijuana program this year as it costs $200 and pot will be legal come July in OR.

Ok, time for decoration moving.

Run arround with ms

Wednesday, March 4th, 2009

Today I did two runs with ms. The first one was much more enjoyable despite teh chilly morning and having drank something called Bad Road at a local restaurant. Piece of advice when drinking a Bad Road, when they ask if you want 10 mile or 5 miles, don’t respond with “10”. So the run went pretty well, a base run of 5.75 miles. It was sunny out as it usually is when it is that cold in Portland and that kept me going strong.

One thing that I found interesting from a radio station I was listening to: Portland was named the #1 most unhappy city in the US by Business Week. I think it is really funny as I know Portlanders are going to get all “unhappy” about it. To me it is good news as it means fewer people will be coming here and clogging up our roads. Won’t do much for my clients that rely on tourism though. In truth Portland is a pretty optimistic place if not overly so. They don’t call us the city of rose(colored glasses)s for nothing.

So my second run(around) with ms happened later this afternoon. I am ending my one year of free rebif from Serano and MS Lifelines. Thanks for the free drugs, I’m sure they have been a help to my situation. The down side to having hope with ms, is that to continue having hope I will have to shell out over $2000 a month for the rest of my life. Turns out the medical assistance program they offer after the first year has very low income requirements which I don’t fall under. I make too much to get assistance, but not enough to be able to afford it.

So I know all of you are asking, come on Marco, you have ms, don’t you have insurance? Well yes I do. Turned out the plan that I originally purchased and read to cover prescriptions doesn’t cover “specialty” medications such as rebif. No soup for you! Healthnet actually will cover up to $4K of “specialty” meds which almost takes me through February every year. Nice job Healthnet, you got me covered! The day I found out about this I just about pooped myself. After several phone calls I found out about the MS Lifelines Access Made Simple program which provides ms patients with free (or nearly free) rebif for a year and then offers assistance after the first year. I was so relieved. Well, it turned out I just put off the pooping a year. As I said earlier, I don’t qualify for further help.

So what to do now? And let the run around begin! I have always gotten really good help from MS Lifelines. Their call center was always helpful and easy to understand. Well, that is until you get transferred out to fulfillment or in today’s case Assistance Program. Seems like a change of company or at the very least pay scale as the service level drops off significantly. Part of me has to wonder if Serano wouldn’t do more for me if I just got to speak to someone else.

My first thought is to get on Ruthann’s insurance, which would “only” run me $800+ a month Good insurance though, eye, ear throat, the whole deal. Well at least that would be my final option. But still not a concretely solution.

So cut adrift I look into the Oregon Prescription Drug Program, a program to lower the cost of prescription drugs. When I first found out about the cost of rebif it was $1800 a month. With OPDP teh cost was lowered to $2300 a month. Oh wait, that is more? Has their been a huge increase in the cost of rebif in a year? Not out of the realm of possibility. I ask if there are other programs that I could try and after some searching she replied, Oh yes there is “the MSLifelines program that will…” Grrrrr. So I call Partner for Prescription Assistance, they also tell me of the low. low price of $2300 a month AND if I order by mail I can get it for only $2000 a month. In addition there is this program called “MSLifelines that will…” Next I try RX Assist and Needy Meds which both tell me of a program called “MSLifelines that will…”. Needy Meds does tell me of several drug card programs that are available: Drug Card America, Patient Card (or something like that), Free Drug Card, PS Card and True RX Services. All of which had websites that looked as if I was going to be ordering a set of knives or Obama coin sets. Id did appear that I could get some sort of discount through them. So now I am down to about $1500 a month.

Not to be discouraged I call on my last hope the Oregon Medical Insurance Pool. This group covers individuals as if they were a group. But, because I have MS, my costs would be pretty high. The woman (Mary) I talked with was very honest about this. In fact if I got the $500 deductible plan, my meds might cost me as much as $40 a month and the plan itself could be as much as $436 a month. She paused for the shock of the high cost to ease from my shoulders. I think I totally surprised her when I said, “Wow that’s great!” Great? she replied. When I told her the cost of my meds I think it made her feel really good to have been such a help. My next question was a doozy though, did OMIP consider rebif a specialty drug and were there any constraints associated with it. After being on hold four separate times she came back to say she wasn’t positive, but it appeared there weren’t. I was just relieved I could afford that, best news I had gotten all day. She promised to send me info on the plan. I think I have a winner.