Archive for the ‘fingolimod’ Category

Four years worth of rebif

Tuesday, March 13th, 2012

Almost a $100,000 thousand worth I have pumped into my body in defense against my ms. I have to say it seems to have stopped any reoccurrence of major symptoms. But maybe they wouldn’t have happened again anyway. Or maybe diet and exercise was the difference? I wish I had security in my medication, but I really don’t. I have more hope being a vegetarian runner. And pushing myself hard. Taking advantage of opportunities, or at least enjoying them. That’s the better medicine.

The choice to switch to the oral meds – fingolimod – has been an interesting one. I’d love to ditch the shots and the excess shipping (almost 50 giant styrofoam coolers) but I think (and so does the nuero) that if treatment is showing success why change? I suppose someday I’ll be on it so why not get started now? I am pretty sure it would be effective for me, but would the change of medication, the actual transition have any worsening effect? Would the pills only come in non-vegetarian gelatin based capsules? Would some aspect of the pills require some gigantic shipping method that dwarfs the rebif styrofoam?

I have had some skin reactions recently, more than just the bruising. Itchy area, general soreness in the shot places and what looked like a small needle infection on my back right side. I moved the spots I normally inject in the area and skipped a cycle. Seemed to clear up. Today I did it in the back of my left arm, a painful one but quick. The backs of my arms seem to be the most painful of all the recommended spots. I have thought about skipping the arms but I want to make sure the other areas don’t get over used.

I didn’t run again today. I’m having some issues with consistency lately. I’ll get better I know it. I am really tired of running in the cold I am ready for some warmer weather.